Colour Festival

25-06-2022 09:30 25-06-2022 15:00 Europe/UK Colour Festival true

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Family Nursing & Home Care’s Colour Festival is back for 2022. After a brief COVID induced hiatus, this incredibly popular fundraising event will be hosted on 25 June 2022. The Colour Festival involves a 5km run through six colour stations where our participants are showered with vibrant (environmentally friendly) coloured powdered paint. 

The event welcomes families, corporate teams and groups of friends who want to take part in a worthwhile and fun fundraising insta worthy event.  

All money from the Colour Festival funds our Paediatric Palliative Care Worker. This role, which provides respite for families with life limiting and life threatening illnesses, allows children to achieve their goals and have the same experiences as others whenever possible. We embrace the emotional, physical and social aspects of the life of  a child with additional needs and do our absolute best to enhance and maximise the quality of life for both the child and their family.

By taking part in the Colour Festival, participants enable the terrific work that FNHC does to support Jersey families through respite and hospital visits, providing continuous charitable and emotional support.

Once participants have completed the FNHC Colour Festival (wearing their Colour Festival t-shirt!) we ask that they take a photo, video or reel and tag “Family Nursing & Home Care” on our social media channels: Facebook, Twitter, LinkedIn and Instagram.

Social media stardom awaits, as does a fantastic day of fun and fundraising.

Event Details:

  • Location: St. Helier Beach (Opposite La Fregate)
  • Check In & Warm Up: 09:30
  • Colour Festival starts: 10:00
  • Colour Festival blast: 13:00

Sign up includes t-shirt and two paint pouches, additional paint can be purchased at check out. 

A huge thank you to our sponsors, Jersey Electricity, Snap Design & Digital, Stonehage Fleming, Jersey Freemasons, Dandara and Appleby. 

Paediatric Palliative Care Worker

  • Why is it important for the Paediatric Palliative Care Worker role to continue?
    The paediatric care worker (PPCW) role provides essential respite for families with life limiting and life threatening illnesses. Respite care for children with these conditions allows them access to activities and days out with the appropriate support, this in turn enables them to achieve their goals and have the same experiences as others wherever possible.

    We embrace the emotional, physical and social aspects of life for a child with additional needs and do our absolute best to enhance their quality of life. We ensure children have the chance to access physical benefits through various activities and outside play.

    The role also provides emotional support so that they have someone to talk to and express how they feel about their diagnosis and the impact it has on them and their families.

    The PPCW also supports the siblings of the children on the pathway. The support offered to each family is variable and uniquely dependent on their needs and circumstances, we have found that supporting the whole family is vital.
  • How has the role evolved over the last year?
    The past couple of years have been far more difficult for our families due to the worries Covid-19 has caused them. Many of our children are classed as ‘at risk,’ which has made it harder for families to access the support they so greatly need.

    We have been able to adapt the role of the PPCW by focusing on the changing needs of the families. This has included respite wherever possible for the family, preparing individual activities for them to enjoy and virtually supporting children when they have had difficult appointments to attend.

    As always, we continue to talk to families about what the PPCW role means to them. The knowledge we have gained from families, other agencies and related professionals has enabled us to create a role we know is beneficial to all who access it.

    The role continues to evolve as we work alongside families to ensure they receive the kind of care they want aligned to their needs. This will be something we always strive to achieve.
  • How has the role helped families in the last year?
    We see all the families and children involved as individuals and ensure the care given best suits their individual needs. Distraction play is something we do often and works well particularly for younger children who are frightened of certain procedures for example blood tests and injections. We take our time to get to know the children so that they can feel comfortable with us and can share their fears or concerns.

    The respite we offer has proven helpful for the entire family and not just the child in need. Offering respite gives a family the chance to spend quality time together either with other siblings or friends, safe in the knowledge that their child in need is being cared for.

    The support given to families is integral to the wellbeing of everyone involved. It can be a very stressful time for the children and their loved ones, the support offered, from respite, hospital visits, charitable and emotional support is something the families continue to value and appreciate.
  • How will the funds raised from the Colour Festival be used towards the paediatric care role?
    The funds raised from the Colour Festival will go towards the funding for the paediatric palliative care worker role, enabling the fantastic work that FNHC do to support the 30 families and their children to continue.
  • How has the role helped Jack and his family?
    ‘Once a week now, I get a precious two hours with this little angel- just the two of us.

    When we were first offered respite care for our son Jack, I remember feeling unsure, as just the thought of it made me feel guilty. To accept it was like admitting I couldn’t cope with two children with very different needs. And to accept it also felt like it was saying I didn’t want to spend time with one of my children, which couldn’t be further from the truth.

    Now that we are a couple of sessions in though, I get it. Jack gets one to one time with a carer who he now completely adores, and who puts together lots of sensory activities for him that I could never have the energy or time to do in our busy week. And I get to focus purely on Seren- something which Is a rarity for her, as her brother takes up most of our time and attention. And it is something she So deserves.

    So in those precious few hours, we plan a little adventure together. We choose places and things it would be difficult to do with her brother. Like rambling along cliff paths, exploring deep into forest and walking pebbly beaches, skipping up places with steps, running down sand dunes and riding her bike- things that other families can access readily, but which we have to think twice about.

    Those 2 hours are so freeing for both of us and we come back rejuvenated (and with the dog properly walked!) and looking forward to seeing or little Jack.

    How lucky we are to be afforded a little slice of time each week, just to be ‘normal’ and so I can give her my all.’

Jack's Story